Clemson stages pep rally at terminally ill 9-month-old’s home (Video)
The family of a terminally ill baby couldn’t make it to a Clemson pep rally. So the school brought the pep rally to them.
Jonathan and Stephanie Bolt’s 9-month-old daughter Addison has Krabbe disease. Jonathan wanted to take his daughter to a Clemson football game, but she’s unable to sit up, eat, or breathe on her own and can’t go. After finding that out, Clemson made sure they got to enjoy a personalized experience.
According to WYFF, Clemson coach Dabo Swinney even signed a football for the family. Well done, Clemson.
Krabbe disease affects 1-in-100,000 people in the United States and there is no known cure.
Krabbe disease is an inherited disorder that destroys the protective coating (myelin) of nerve cells in the brain and throughout the nervous system.
In most cases, signs and symptoms of Krabbe disease develop in babies before 6 months of age, and the disease usually results in death by age 2. When it develops in older children and adults, the course of the disease can vary greatly.
The Bolts, who live in Piedmont, also said the state of South Carolina does not test babies immediately after birth for the disease and believe earlier detection might have been able to prolong her life.
For more Clemson news, visit TigerIllustrated.com.
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Nick Bromberg is the assistant editor of Dr. Saturday on Yahoo Sports. Have a tip? Email him at [email protected] or follow him on Twitter!
